Some DIPG Facts

 

DIPG is a form of pediatric cancer.

DIPG is a type of tumor that starts in the brain stem, the part of the brain just above the back of the neck and connected to the spine. The brain stem controls breathing, heart rate and the nerves and muscles that help us see, hear, walk, talk and eat. These tumors are called gliomas because they grow from glial cells, a type of supportive cell in the brain.

DIPG has a survival rate of 2%.

Unfortunately, DIPG tumors cannot be surgically removed because of their remote location, where they intertwine with normal brain tissue and affect the delicate and complex functions this area controls. These tumors are more often seen in school-aged children and they’re deadly — DIPG and Glioma tumors are responsible for the highest number of childhood deaths from primary brain tumors.

Awareness is needed for more DIPG funding.

The truth is, prior to Lucy’s situation, most of our families and extended loved ones had never heard of DIPG. This disease affects 300-400 new children per year in the United States alone, making it extremely rare and deadly. However, very little is known on the root causes of DIPG, let alone a cure. With your help, we can raise more awareness of DIPG in hopes children can be saved from this ruthless tumor.

Let’s Beat DIPG

Help us spread awareness.